Tomorrow will be the five-month anniversary of the day the Lord took our son David to his heavenly home. When David was born, my husband and I entered an unknown world of being the parents of a child with extensive medical needs that our lives centered around meeting his needs.
During David’s short lifetime, we’ve faced a long list of diagnoses with diseases we had never even heard of before, fragile bones which resulted is numerous fractures, evaluations by doctors that put David’s life-expectancy at twelve years or less, dozens of hospitalizations which could have ended in death, and even a legal battle to not lose all his essential nursing care when he turned twenty-one. In the midst of all of this, the Lord graciously gave us thirty-four years with David.
On this Thankful Thursday, I’m grateful for the work God has done in my husband’s and my life over the last thirty-four plus years to bring us to the place where the attributes of God’s character have moved from being words in a book to being truths we now know by personal experience. Trials are rich soil in which our knowledge of God has the opportunity to grow.
- I now know our God is a loving and compassionate Father, because I’ve seen His love and compassion in innumerable situations in our lives.
- I now know God is faithful to keep His promises, because in one circumstance after another God has given us promises and then done exactly what He promised.
- I now know God has the power to do what looks impossible in my eyes, because I’ve seen Him turn around several situations that looked impossible.
The one situation that stands out to me above all others was what God did when David aged out of the children’s services program that provided him with sixteen hours a day of private duty nursing care. When David’s twenty-first birthday was approaching, the state offered us only two options. We could choose to keep David at home and meet his extensive medical needs without any nursing care, or we could institutionalize him in a state school. We went to visit the nearest state school for the disabled, and they told us they really hoped we would not enroll him there, because they were not able to meet his extensive medical needs. We’ve never faced a situation that looked more impossible!
God gave us a promise: “With man this is impossible, but with God all things are possible.” (Matthew 19:26 ESV) As I was praying, the Lord brought to mind the name of a legal assistance program, Advocacy, Inc. (now known as Disability Rights Texas). I made a call to the local legal office, but this was such a major case that we ended up being represented at the Federal District Court by the top legal team for disability rights in the state of Texas, at no cost to us.
Through a legal settlement, God made a way for us to continue to meet David’s needs in our home, with no reduction in the level of services he received as a child, until the day the Lord took him home. And He provided the added benefit of setting a legal precedent through our case that has helped numerous other families who have faced the same situation when their son or daughter turned twenty-one.
Now that our son is safely in God’s presence, no longer suffering but whole for the first time, our family is walking in a season of transition. The past is behind us, the future uncertain. In this situation, a quote I heard many years ago has come to mind. While I don’t have a clear picture of what lies ahead, I do know the One who does. As Corrie ten Boom said, “Never be afraid to trust an unknown future to a known God.”
Today, I want to encourage you to look at your current circumstances through the lens of God’s attributes. How has He shown Himself to you through the struggles you’ve walked through? What characteristics of God have moved from simply being something you’ve read about in the Word of God to something you now know by personal experience? Let’s encourage one another today by sharing how your battles with chronic illnesses and whatever other difficulties have been a part of your life have helped you grow in your knowledge of God.
Praying for you all. Thank you for sharing about David and the journey.